We host the annual SOS Walk to help raise funds to educate the general public about sickle cell disease. We work to stomp out sickle cell disease through
education, research and advocacy.
I never realized what a need there was for people with sickle cell disease until I got involved with SOS Walk. There are millions of people in America. Living comfortably, it’s easy to forget that other people out there don’t have it as easy as you do. Volunteering with SOS Walk opened my eyes and heart to a whole small world of people impacted by sickle cell disease. I'm glad that I can help!”
SOS Walk Volunteer
“I'm so thankful for the SOS Walk. I've walked in support of their efforts to Stomp Out Sickle Cell Disease every year since they started. I also receive medical treatment and support services through Howard University Hospital and the Howard University Center for Sickle Cell Disease. I also have received counseling through Faces of Our Children,.
It helps me get through the tough times knowing that someone really cares!"
Sickle Cell Client
Center for Sickle Cell Disease
We would like to thank all the volunteers and those who came out to walk to Stomp Out Sickle Cell Disease (SOS).
We would also like to give a very big THANK YOU to all who donated to our 2014 SOS Walk. – we really appreciate your support and contributions! It's not to late donate today!
WE HAVE 30,309 SIGNATURES
WE NEED 69,691 MORE
WHICH MEANS WE NEED 4,978 PER DAY
TO REACH OUR GOAL of 100,000
It's time! The White House Petition to bring national attention to the Sickle Cell Treatment Act - H.R. Bill 5124 is up and it's time for us all to roll up our sleeves and get to work in obtaining signatures.
SCDAA and the SCD Community is requesting that the President of the United States acknowledge and declare of Sickle Cell Disease as a national health priority; support legislative Bill - H.R. 5124 and return funding for SCD programs in the President's budget.
According to the White House instructions we have to:
Obtain 150 signatures to get this petition publicly searchable and then;
Secure an additional 99,850 signatures (a total of 100,000 signatures)
All BY OCTOBER 22, 2014 !!!
We believe that this will be a cinch! As a matter of fact we are challenging the SCD Community and friends to let's raise the bar and get even more signatures. Let's make a statement to President Obama and his Administration that Sickle Cell Disease is Real and deserves to be a priority!
Let's All Unite and Make this Happen! Let's Make Our Voice Heard for All Patients, Families, Providers and Communities Affected!
Remember - We only have 30 Days!!
Ways to Insure Success!
Forward the petition link with a personal message to as many patients, families
and supporters as possible.
Ask your local churches to join in the campaign and make Sundayannouncements.
Try to get interviews on your local radio stations and ask for support by providing the link.
Join with your local sorority, fraternity and civic groups to increase signature efforts.
Post the link with a message to your social networks (Facebook, Twitter, Instagram, etc)
Howard University Center For Sickle Cell Disease is looking for sickle cell patients 18 years old and older who participated in at least one clinical research study to interview, (see flyer HERE), the phone interview is approximately 45 minutes and the participant will be compensated for their time. For further information contact 202-865-8293
SCDAA & THE SCD COMMUNITY COLLECTS 100,000 SIGNATURES!
We have reached the mandatory goal of 100,000 signatures! Now let's show the White House we mean business and collect even more!
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